Hello again. Some of you are probably wondering how things are going. Well, we are still in midst of testing chaos. I just wish I knew how to feel normal again. I can safely say that things aren't getting worse anymore, though the level I'm at is not a good one right now. I still have a constant headache that sometimes blows up into a really bad headache. I am still having periods of "lost time" or "blackouts", if you prefer. The worst part is being tired all the time.
Last night I had a sleep study test done. They plugged me into all these electrodes and stuff and then said "sleep like normal". Now explain to me how I'm supposed to sleep in a strange place, in a different bed, without my wife, with wires sticking out of my head, and sleep like 'normal'. I didn't understand the purpose of the test, honestly, but the doctor ordered it. After about 2 hours of this, they decided I wasn't breathing right, so they put this nose plug thing on that forces air into my nose and told me to sleep with my mouth shut. So now am I not only in a weird place, with wires sticking out of me, but now I'm being forced to constantly inhale and I have to keep my mouth shut in my sleep. Is there any sense to this? How can they possibly tell what "normal" is for me when all this "abnormal" stuff is going on? But, that's what the doctor wanted.
Today I go in to have more electrodes put on me for a "24 hour eeg". They are going to watch my brain patterns for a full 24 hours to see if I have anything abnormal, like mini-seizures going on or something. Great. I hate having them, and I don't have them every day, but now we want one to happen so they can see it. Whatever they are.
Tomorrow I have an MRA, which is similar to an MRI, but it measures blood flow and things like that.
Are these tests getting us anywhere? Are the meds I'm taking really doing anything? I think the meds are at least stabilizing me, but I just want to feel normal again. And even if this is my "new normal", fine, then let me get on with my life - find me a job I can do or put me on disability or whatever.
