Tuesday, July 22, 2008

An Update

So, as I mentioned yesterday, we were finally able to convice the hospital to go ahead and schedule the tests I need. Apparently there is a fund we can appeal to that will help us with the bill. Once we promised to do that then they scheduled them. My neurologist has been wanting these done "immediately" for quite some time, so she got them in as soon as possible, which is tomorrow. Apparently they are doing three different types of MRIs and theres some test on my auditory nerves, but that one is way out in October. Those of you who are of the praying persuasion please pray that this will be the thing that finally gets us some kind of diagnosis.

I listen to the radio a lot. I heard a replay of an interview that Dr. Dobson did with Tony Snow a while back. At the time of the interview, Mr. Snow had just started his chemotherapy. (For any who may not know, Mr. Snow was White House Press Secratary for many years for George W. Bush. He was diagnosed with colon cancer about 5 years ago. Just this past week he lost his battle and passed away.) During the interview Mr. Snow said the worst part of any disease is not the symptoms, not the tests, not the treatment, it's the "not knowing". It's the time between when you discover something is wrong and the time you find out what that is and can go forward with treatment. I couldn't agree more. However, instead of hours or days or a few weeks, I have been in this waiting period for about a year and a half now. It's not the pain, it's not the difficulty walking, it's not the really bad days where I can barely move - it's the not knowing. It's the unable-to-start-treatment-because-we-don't-know-what-to-treat. How much longer do I have to live in this limbo?

Ok, enough whining. On to other news. As I write this, my mom and step-dad are on their way here with Cheni and Derek and our new van. I hope they behaved themselves, I didn't realize how much of a drain on my energy they were until they were gone. The yelling, the fighting. I didn't miss that. But that's how teenagers are. When my brother and I were Cheni and Derek's ages we nearly killed each other - literally. Boxing matches, knife fights, broken windows - we took most of the house with us.

Not sure what else to report right now. Tasha's only a few days away from being ready for her driver's test - yay! She's dying, ready to have that freedom. I envy her. There's nothing like that first moment when you realize you can go anywhere and do anything on your own. However, now that gas is heading toward $5 a gallon or more, not sure how free anyone really is anymore. When the average minimum wage earner has to work two hours a day just for the gas to get back and forther to work - not sure how much it's worth it.... but that's a discussion for another post.

So, that's the news for a while. Post again soon.